Tracking Parkinson's
Tracking Parkinson's

Study participants

This section is for study participants - People with Parkinson's and their siblings

Answering the Questionnaires online is optional.

You can answer them on paper as before.

It is important that you fill out Questionnaires at the right time.

 

You will get an email from your Study Nurse before your Study visit.

 

This will contain your link to filling out the Questionnaires for that visit.

 

If you have created a login and are due to attend for a Study visit but have not received this email, please contact your Study Nurse.

Instructions

How to answer questionnaires online

Create your login

To fill out Questionnaires you need to create your own Login (use the button below).

 

You will need to have your own initial (temporary) password (please obtain from your local Study Nurse).

 

After you have created your Login, you will be able fill out your Questionnaires before a Study Visit.

Reset your password

If you have already created your own login, and have lost your password, you can use the link below to reset it.

Contact the study team

Use the link below to contact the Central Administrator about login or online questionnaire problems.

How we use your data

Thank you for participating in our study!

 

Below you will find some information about how we process your data.  Please review it and email our coordinating centre if you have any questions or concerns.  


Your NHS research site (hospital or treatment centre) will keep your name, contact details and other confidential information and will not pass this information to NHS Greater Glasgow & Clyde (study sponsor) or University of Glasgow (grant holder).


Your NHS research site will use this information as needed, to contact you about the research study and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study.  


Certain individuals from NHS Greater Glasgow & Clyde and regulatory organisations may look at your medical and research records to check the accuracy of the research study.  NHS Greater Glasgow & Clyde will only receive information without any identifying information.  The people who analyse the information will not be able to identify you and will not be able to find your name or contact details.  


Your NHS research site may pass these details to NHS Greater Glasgow & Clyde along with the information collected from you and/or your medical records. The only people in at NHS Greater Glasgow & Clyde who will have access to information that identifies you will be people who need to contact you to or audit the data collection process. The people who analyse the information will not be able to identify you and will not be able to find out your name or contact details.


University of Glasgow Finance department issues payment for travel claims to study participants.  As such, the Finance department will hold your name, address and/or bank details to make the payment.  However, no one at the University of Glasgow will have access to the medical information that you provide as part of the study, and will not be able to match your name to your study data.


Your NHS research site (the hospital or treatment centre) will keep identifiable information about you from this study 15 years after the study has finished, until the year 2037.  

 

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