Tracking Parkinson's
Tracking Parkinson's

Study participants

This section is for study participants - People with Parkinson's and their siblings

Read our publications

Now that the study has been running for several years, we are able to publish some results!  All our articles are freely accesible online.  Check back regularly for new papers.

Learn about our collaborators

The impact of our research is going farther and wider because we collaborate with other major research projects.

Contact the study team

Use the link below to contact the study team by email, or phone us at 0141 330 2058.

How we use your data

Thank you for participating in our study!

 

Below you will find some information about how we process your data.  Please review it and email our coordinating centre if you have any questions or concerns.  


Your NHS research site (hospital or treatment centre) will keep your name, contact details and other confidential information and will not pass this information to NHS Greater Glasgow & Clyde (study sponsor) or University of Glasgow (grant holder).


Your NHS research site will use this information as needed, to contact you about the research study and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study.  


Certain individuals from NHS Greater Glasgow & Clyde and regulatory organisations may look at your medical and research records to check the accuracy of the research study.  NHS Greater Glasgow & Clyde will only receive information without any identifying information.  The people who analyse the information will not be able to identify you and will not be able to find your name or contact details.  


Your NHS research site may pass these details to NHS Greater Glasgow & Clyde along with the information collected from you and/or your medical records. The only people in at NHS Greater Glasgow & Clyde who will have access to information that identifies you will be people who need to contact you to or audit the data collection process. The people who analyse the information will not be able to identify you and will not be able to find out your name or contact details.


University of Glasgow Finance department issues payment for travel claims to study participants.  As such, the Finance department will hold your name, address and/or bank details to make the payment.  However, no one at the University of Glasgow will have access to the medical information that you provide as part of the study, and will not be able to match your name to your study data.


Your NHS research site (the hospital or treatment centre) will keep identifiable information about you from this study 15 years after the study has finished, until the year 2037.  

 

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