Data collection for our study is on-going. Below is an overview of data collected for recent-onset cases at each follow-up visit.
We welcome initial informal applications about use of the datasets and/or blood samples to support other Parkinson's research studies. Please email us to explain what research ideas you have and how we might follow-up.
We can then assist you to prepare a written application to the Data & Biosample Access committee, which is a short form defining the proposed study.
The process is then completed by a Data Transfer Agreement with our study sponsor, NHS Greater Glasgow & Clyde.
Please email the study team with any questions.
Clinical assessments (n)
Months è |
0 |
6 |
12 |
18 |
24 |
30 |
36 |
42 |
54 |
72 |
90 |
Scaleê |
|||||||||||
Blood pressure |
1961 |
- |
- |
1719 |
- |
- |
1418 |
- |
884 |
466 |
42 |
BMI |
1907 |
- |
- |
- |
- |
- |
1295 |
- |
787 |
407 |
35 |
Clinical Impression Severity Index for Parkinson’s (CISI-PD) |
- |
2109 |
- |
- |
1570 |
- |
- |
1001 |
- |
- |
170 |
Diagnostic features |
|
|
1824 |
|
|
1498 |
|
|
|
514 |
173 |
Dyskinesia scale |
|
|
|
|
|
|
|
|
|
877 |
|
Height |
1915 |
- |
- |
- |
- |
- |
1384 |
- |
865 |
454 |
35 |
Hoehn & Yahr stages |
1927 |
- |
- |
1677 |
- |
- |
1345 |
- |
823 |
148 |
35 |
L-dopa challenge |
|
|
|
|
1225 |
|
|
|
|
74 |
|
Current Medication (for Parkinson’s and others) |
2258 |
1844 |
1783 |
1713 |
1575 |
1481 |
1395 |
974 |
872 |
523 |
177 |
Montreal Cognitive Assessment (MoCA) |
1953 |
- |
- |
1703 |
- |
- |
1395 |
- |
863 |
453 |
41 |
Schwab & England Activities of Daily Living |
1940 |
- |
- |
1698 |
- |
- |
1389 |
- |
867 |
441 |
36 |
Unified Parkinson’s Disease Rating Scale UPDRS Section 1 |
1948 |
- |
- |
1706 |
- |
- |
1402 |
- |
872 |
449 |
37 |
UPDRS Section 3 |
1949 |
- |
- |
1704 |
- |
- |
1402 |
- |
873 |
350 |
36 |
UPDRS Section 4 |
1941 |
- |
- |
1692 |
- |
- |
1398 |
- |
870 |
439 |
37 |
Weight |
1918 |
- |
- |
|
- |
- |
1311 |
- |
796 |
412 |
37 |
Patient self-reporting (n)
Months è |
0 |
6 |
12 |
18 |
24 |
30 |
36 |
42 |
54 |
72 |
90 |
Scaleê |
|||||||||||
Big Five Inventory (BFI) |
- |
- |
1686 |
- |
- |
- |
- |
- |
- |
- |
- |
Demographics |
2263 |
- |
- |
- |
- |
- |
- |
- |
- |
- |
- |
Epworth Sleepiness Scale (ESS) |
1917 |
- |
- |
1645 |
- |
- |
1339 |
- |
841 |
432 |
30 |
EQ-5D |
1917 |
- |
- |
1644 |
- |
- |
1338 |
- |
840 |
431 |
30 |
Family History |
2253 |
- |
- |
|
- |
- |
|
- |
|
|
|
Gastroparesis Cardinal Symptom Index (GCSI) |
1916 |
- |
- |
1650 |
- |
- |
1344 |
- |
843 |
436 |
28 |
Hospital Anxiety & Depression Scale (HADS) |
1875 |
- |
- |
1613 |
- |
- |
1313 |
- |
814 |
422 |
29 |
Leeds Scales for the Self-Assessment of Anxiety and Depression (LADS) |
1878 |
- |
- |
1614 |
- |
- |
1314 |
- |
819 |
|
|
Medications – Wearing off |
- |
229 |
- |
- |
- |
1492 |
- |
- |
- |
481 |
171 |
Mini Environmental Risk Questionnaire (MERQ) |
- |
- |
1766 |
- |
- |
- |
- |
- |
- |
- |
- |
Non-motor Symptoms Scale (NMSS) |
1913 |
- |
- |
1641 |
- |
- |
1338 |
- |
833 |
432 |
27 |
Olfaction – UPSIT |
- |
1242 |
- |
- |
- |
- |
- |
- |
- |
- |
- |
Olfaction – Sniffin Sticks |
- |
455 |
- |
- |
- |
- |
- |
- |
- |
- |
- |
Past medical history |
2257 |
- |
- |
- |
- |
- |
- |
- |
- |
- |
165 |
Parkinson’s Disease Questionnaire (PDQ8) |
1918 |
- |
- |
1650 |
- |
- |
1345 |
- |
844 |
432 |
31 |
Parkinson’s Disease Sleep Scale (PDSS) |
1907 |
- |
- |
1624 |
- |
- |
1329 |
- |
825 |
430 |
27 |
Questionnaire for Impulsive-Compulsive Disorder in Parkinson’s Disease (QUIP) |
1912 |
- |
- |
1645 |
- |
- |
1339 |
- |
838 |
432 |
28 |
REM Sleep Behaviour Disorder screening (RBD) |
1937 |
- |
- |
1665 |
- |
- |
1355 |
- |
851 |
440 |
32 |
Scales for Outcomes in Parkinson’s Disease – Autonomic questionnaire (SCOPA-AUT) |
1916 |
- |
- |
1647 |
- |
- |
1342 |
- |
841 |
434 |
28 |
UPDRS Patient – Section 1 |
1912 |
- |
- |
1641 |
- |
- |
1340 |
- |
837 |
434 |
28 |
UPDRS Patient – Section 2 |
1915 |
- |
- |
1645 |
- |
- |
1341 |
- |
841 |
433 |
28 |
Serum samples (n)
Months |
0 |
6 |
12 | 18 | 24 | 30 | 36 | 42 | 54 | 72 | 90 |
|
|||||||||||
Recent-onset cases |
1642 |
- | - | 1107 | - | - | 572 | - | 217 | 450 | 29 |
Applications for data and biosample access are reviewed by committee.
Researchers should download and complete the form below, and submit via email.
Normally, applicants will receive a response within three weeks.