Tracking Parkinson's
Tracking Parkinson's

2019 Dataset for Recent-onset cases

Download metadata

.zip file of data dictionaries

Data collection for our study is on-going. Below is an overview of data collected for recent-onset cases at each follow-up visit.  

 

We welcome initial informal applications about use of the datasets and/or blood samples to support other Parkinson's research studies.  Please email us to explain what research ideas you have and how we might follow-up.  

 

We can then assist you to prepare a written application to the Data & Biosample Access committee, which is a short form defining the proposed study.

 

The process is then completed by a Data Transfer Agreement with our study sponsor, NHS Greater Glasgow & Clyde.

 

Please email the study team with any questions.

Clinical assessments (n)

Months è

0

6

12

18

24

30

36

42

54

72

90

Scaleê

Blood pressure

1922

-

-

-

-

-

1298

-

747

467

37

Clinical Impression Severity Index for Parkinson’s (CISI-PD) 

-

1893

-

-

1580

-

-

1000

-

-

37

Diagnostic features

-

-

1814

-

-

1492

-

-

-

463

38

Dyskinesia scale

-

-

-

-

-

-

-

-

843

-

 

Height

1954

-

-

-

-

-

1385

-

822

155

 

Weight

1958

-

-

-

-

-

1317

-

763

140

 

Current Medication (for Parkinson’s and others)

1995

1875

1818

1729

1585

1498

1414

986

825

465

37

L-dopa challenge

-

-

-

-

1033

-

-

-

-

171

 

Montreal Cognitive Assessment (MoCA)

1846

-

-

1591

-

-

1281

-

746

462

41

Unified Parkinson’s Disease Rating Scale (UPDRS)

Sections 1, 3 and 4

1540

-

-

1259

-

-

948

-

576

457

38

Hoehn & Yahr stages

1979

-

-

1696

-

-

1351

-

785

106

 

Patient self-reporting (n)

Months è

0

6

12

18 24 30

36

42

54

72

90

Scaleê

Big Five Inventory (BFI)

-

-

1686

-

-

-

-

-

-

-

 

Constipation

1916

-

-

1644

1916

-

1321

-

795

436

29

Demographics

1957

-

-

-

-

-

-

-

-

-

 

Epworth Sleepiness Scale (ESS)

1917

-

-

1631

-

-

1319

-

777

471

48

Family History

907

-

-

-

-

-

-

-

-

-

 

Hospital Anxiety & Depression Scale (HADS)

1912

-

-

1599

-

-

1291

-

793

471

48

Medications – Wearing off

-

-

-

-

-

1486

-

-

-

431

29

Mini Environmental Risk Questionnaire (MERQ)

-

-

1766

-

-

-

-

-

-

-

 

Non-motor Symptoms Scale (NMSS)

1519

-

-

1295

-

-

1037

-

569

439

31

Olfaction – UPSIT

-

1242

-

-

-

-

-

-

-

-

 

Olfaction – Sniffin Sticks

-

455

-

-

-

-

-

-

-

-

 

Past medical history

1903

-

-

-

-

-

-

-

-

-

38

Parkinson’s Disease Questionnaire (PDQ8)

1912

-

-

1632

-

-

1331

-

780

471

48

Parkinson’s Disease Sleep Scale (PDSS)

1854

-

-

1564

-

-

1251

-

724

439

31

Quality of life (EQ-5D)

1940

-

-

1636

-

-

1317

-

786

471

48

Questionnaire for Impulsive-Compulsive Disorder in Parkinson’s Disease (QUIP)

408

-

-

1602

-

-

1277

-

760

436

29

REM Sleep Behaviour Disorder screening (RBD)

1866

-

-

1558

-

-

1260

-

731

471

48

Scales for Outcomes in Parkinson’s Disease – Autonomic questionnaire (SCOPA-AUT)

1948

-

-

986

-

-

776

-

461

436

29

UPDRS Patient – Sections 1 and 2

1540

-

-

1259

-

-

948

-

576

436

29

Serum samples (n)

Months 

0

6

12 18 24 30 36 42 54 72 90

 

Recent-onset cases

1642

- - 1107 - - 572 - 217 450 29

APPLY FOR DATA ACCESS

Applications for data and biosample access are reviewed by committee.

 

Researchers should download and complete the form below, and submit via email.

 

Normally, applicants will receive a response within three weeks.

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