Tracking Parkinson's
Tracking Parkinson's
Back to Data

2019 Dataset for Recent-onset cases

Download metadata

.zip file of data dictionaries

Download

Data collection for our study is on-going. Below is an overview of data collected for recent-onset cases at each follow-up visit.  

 

We welcome initial informal applications about use of the datasets and/or blood samples to support other Parkinson's research studies.  Please email us to explain what research ideas you have and how we might follow-up.  

 

We can then assist you to prepare a written application to the Data & Biosample Access committee, which is a short form defining the proposed study.

 

The process is then completed by a Data Transfer Agreement with our study sponsor, NHS Greater Glasgow & Clyde.

 

Please email the study team with any questions.

Clinical assessments (n)

Months è

0

6

12

18

24

30

36

42

54

72

 90

Scaleê

Blood pressure

1922

-

-

-

-

-

1298

-

747

467

 37

Clinical Impression Severity Index for Parkinson’s (CISI-PD) 

-

1893

-

-

1580

-

-

1000

-

-

 37

Diagnostic features

-

-

1814

-

-

1492

-

-

-

463

 38

Dyskinesia scale

-

-

-

-

-

-

-

-

843

-

  

Height

1954

-

-

-

-

-

1385

-

822

155

  

Weight

1958

-

-

-

-

-

1317

-

763

140

  

Current Medication (for Parkinson’s and others)

1995

1875

1818

1729

1585

1498

1414

986

825

465

 37

L-dopa challenge

-

-

-

-

1033

-

-

-

-

171

  

Montreal Cognitive Assessment (MoCA)

1846

-

-

1591

-

-

1281

-

746

462

 41

Unified Parkinson’s Disease Rating Scale (UPDRS)

Sections 1, 3 and 4

1540

-

-

1259

-

-

948

-

576

457

 38

Hoehn & Yahr stages

1979

-

-

1696

-

-

1351

-

785

106

  

Patient self-reporting (n)

Months è

0

6

12

 18 24 30

36

42

54

72

 90

Scaleê

Big Five Inventory (BFI)

-

-

1686

-

-

-

-

-

-

-

  

Constipation

1916

-

-

1644

1916

-

1321

-

795

436

 29

Demographics

1957

-

-

-

-

-

-

-

-

-

  

Epworth Sleepiness Scale (ESS)

1917

-

-

1631

-

-

1319

-

777

471

 48

Family History

907

-

-

-

-

-

-

-

-

-

  

Hospital Anxiety & Depression Scale (HADS)

1912

-

-

1599

-

-

1291

-

793

471

 48

Medications – Wearing off

-

-

-

-

-

1486

-

-

-

431

 29

Mini Environmental Risk Questionnaire (MERQ)

-

-

1766

-

-

-

-

-

-

-

  

Non-motor Symptoms Scale (NMSS)

1519

-

-

1295

-

-

1037

-

569

439

 31

Olfaction – UPSIT

-

1242

-

-

-

-

-

-

-

-

  

Olfaction – Sniffin Sticks

-

455

-

-

-

-

-

-

-

-

  

Past medical history

1903

-

-

-

-

-

-

-

-

-

 38

Parkinson’s Disease Questionnaire (PDQ8)

1912

-

-

1632

-

-

1331

-

780

471

 48

Parkinson’s Disease Sleep Scale (PDSS)

1854

-

-

1564

-

-

1251

-

724

439

 31

Quality of life (EQ-5D)

1940

-

-

1636

-

-

1317

-

786

471

 48

Questionnaire for Impulsive-Compulsive Disorder in Parkinson’s Disease (QUIP)

408

-

-

1602

-

-

1277

-

760

436

 29

REM Sleep Behaviour Disorder screening (RBD)

1866

-

-

1558

-

-

1260

-

731

471

 48

Scales for Outcomes in Parkinson’s Disease – Autonomic questionnaire (SCOPA-AUT)

1948

-

-

986

-

-

776

-

461

436

 29

UPDRS Patient – Sections 1 and 2

1540

-

-

1259

-

-

948

-

576

436

 29

Serum samples (n)

Months 

0

6

 12 18 24 30 36 42 54 72 90

 

Recent-onset cases

1642

 - - 1107 - - 572 - 217 450 29

APPLY FOR DATA ACCESS

Applications for data and biosample access are reviewed by committee.

 

Researchers should download and complete the form below, and submit via email.

 

Normally, applicants will receive a response within three weeks.

Download application
Print Print | Sitemap
© D2016
Login

Web ViewMobile View

Logout | Edit page