Data collection for our study is on-going. Below is an overview of data collected for recent-onset cases at each follow-up visit.
We welcome initial informal applications about use of the datasets and/or blood samples to support other Parkinson's research studies. Please email us to explain what research ideas you have and how we might follow-up.
We can then assist you to prepare a written application to the Data & Biosample Access committee, which is a short form defining the proposed study.
The process is then completed by a Data Transfer Agreement with our study sponsor, NHS Greater Glasgow & Clyde.
Please email the study team with any questions.
Clinical assessments (n)
Months è |
0 |
6 |
12 |
18 |
24 |
30 |
36 |
42 |
54 |
72 |
Scale ê |
||||||||||
Blood pressure |
1922 |
- |
- |
- |
- |
- |
1298 |
- |
747 |
138 |
Clinical Impression Severity Index for Parkinson’s (CISI-PD) |
- |
1893 |
- |
- |
1580 |
- |
- |
1000 |
- |
- |
Diagnostic features |
- |
- |
1814 |
- |
- |
1492 |
- |
- |
- |
139 |
Dyskinesia scale |
- |
- |
- |
- |
- |
- |
- |
- |
843 |
- |
Height |
1954 |
- |
- |
- |
- |
- |
1385 |
- |
822 |
155 |
Weight |
1958 |
- |
- |
- |
- |
- |
1317 |
- |
763 |
140 |
Current Medication (for Parkinson’s and others) |
1995 |
1875 |
1818 |
1729 |
1585 |
1498 |
1414 |
986 |
825 |
142 |
L-dopa challenge |
- |
- |
- |
- |
1033 |
- |
- |
- |
- |
22 |
Montreal Cognitive Assessment (MoCA) |
1846 |
- |
- |
1591 |
- |
- |
1281 |
- |
746 |
155 |
Unified Parkinson’s Disease Rating Scale (UPDRS) Sections 1, 3 and 4 |
1540 |
- |
- |
1259 |
- |
- |
948 |
- |
576 |
41 |
Hoehn & Yahr stages |
1979 |
- |
- |
1696 |
- |
- |
1351 |
- |
785 |
106 |
Patient self-reporting (n)
Months è |
0 |
6 |
12 |
18 |
24 |
30 |
36 |
42 |
54 |
72 |
Scale ê |
||||||||||
Big Five Inventory (BFI) |
- |
- |
1686 |
- |
- |
- |
- |
- |
- |
- |
Constipation |
1916 |
- |
- |
1644 |
1916 |
- |
1321 |
- |
795 |
156 |
Demographics |
1957 |
- |
- |
- |
- |
- |
- |
- |
- |
- |
Epworth Sleepiness Scale (ESS) |
1917 |
- |
- |
1631 |
- |
- |
1319 |
- |
777 |
|
Family History |
907 |
- |
- |
- |
- |
- |
- |
- |
- |
- |
Hospital Anxiety & Depression Scale (HADS) |
1912 |
- |
- |
1599 |
- |
- |
1291 |
- |
793 |
760 |
Medications – Wearing off |
- |
- |
- |
- |
- |
1486 |
- |
- |
- |
124 |
Mini Environmental Risk Questionnaire (MERQ) |
- |
- |
1766 |
- |
- |
- |
- |
- |
- |
- |
Non-motor Symptoms Scale (NMSS) |
1519 |
- |
- |
1295 |
- |
- |
1037 |
- |
569 |
93 |
Olfaction – UPSIT |
- |
1242 |
- |
- |
- |
- |
- |
- |
- |
- |
Olfaction – Sniffin Sticks |
- |
455 |
- |
- |
- |
- |
- |
- |
- |
- |
Past medical history |
1903 |
- |
- |
- |
- |
- |
- |
- |
- |
- |
Parkinson’s Disease Questionnaire (PDQ8) |
1912 |
- |
- |
1632 |
- |
- |
1331 |
- |
780 |
|
Parkinson’s Disease Sleep Scale (PDSS) |
1854 |
- |
- |
1564 |
- |
- |
1251 |
- |
724 |
118 |
Quality of life (EQ-5D) |
1940 |
- |
- |
1636 |
- |
- |
1317 |
- |
786 |
|
Questionnaire for Impulsive-Compulsive Disorder in Parkinson’s Disease (QUIP) |
408 |
- |
- |
1602 |
- |
- |
1277 |
- |
760 |
160 |
REM Sleep Behaviour Disorder screening (RBD) |
1866 |
- |
- |
1558 |
- |
- |
1260 |
- |
731 |
|
Scales for Outcomes in Parkinson’s Disease – Autonomic questionnaire (SCOPA-AUT) |
1948 |
- |
- |
986 |
- |
- |
776 |
- |
461 |
94 |
UPDRS Patient – Sections 1 and 2 |
1540 |
- |
- |
1259 |
- |
- |
948 |
- |
576 |
41 |
Serum samples (n)
Months |
0 |
6 |
12 |
18 |
24 |
30 |
36 |
42 |
54 |
72 |
|
||||||||||
Recent-onset cases |
1642 |
- | - | 1107 | - | - | 572 | - | 217 | 16 |