Tracking Parkinson's
Tracking Parkinson's

2020 Dataset for Recent-onset cases

Download metadata

.zip file of data dictionaries

Data collection for our study is on-going. Below is an overview of data collected for recent-onset cases at each follow-up visit.  

 

We welcome initial informal applications about use of the datasets and/or blood samples to support other Parkinson's research studies.  Please email us to explain what research ideas you have and how we might follow-up.  

 

We can then assist you to prepare a written application to the Data & Biosample Access committee, which is a short form defining the proposed study.

 

The process is then completed by a Data Transfer Agreement with our study sponsor, NHS Greater Glasgow & Clyde.

 

Please email the study team with any questions.

Clinical assessments (n)

Months è

0

6

12

18

24

30

36

42

54

72

90

Scaleê

Blood pressure

1961

-

-

1719

-

-

1418

-

884

466

42

BMI

1907

-

-

-

-

-

1295

-

787

407

35

Clinical Impression Severity Index for Parkinson’s (CISI-PD) 

-

2109

-

-

1570

-

-

1001

-

-

170

Diagnostic features

 

 

1824

 

 

1498

 

 

 

514

173

Dyskinesia scale

 

 

 

 

 

 

 

 

 

877

 

Height

1915

-

-

-

-

-

1384

-

865

454

35

Hoehn & Yahr stages

1927

-

-

1677

-

-

1345

-

823

148

35

L-dopa challenge

 

 

 

 

1225

 

 

 

 

74

 

Current Medication (for Parkinson’s and others)

2258

1844

1783

1713

1575

1481

1395

974

872

523

177

Montreal Cognitive Assessment (MoCA)

1953

-

-

1703

-

-

1395

-

863

453

41

Schwab & England Activities of Daily Living

1940

-

-

1698

-

-

1389

-

867

441

36

Unified Parkinson’s Disease Rating Scale UPDRS Section 1

1948

-

-

1706

-

-

1402

-

872

449

37

UPDRS Section 3

1949

-

-

1704

-

-

1402

-

873

350

36

UPDRS Section 4

1941

-

-

1692

-

-

1398

-

870

439

37

Weight

1918

-

-

 

-

-

1311

-

796

412

37

Patient self-reporting (n)

Months è

0

6

12

18

24

30

36

42

54

72

90

Scaleê

Big Five Inventory (BFI)

-

-

1686

-

-

-

-

-

-

-

-

Demographics

2263

-

-

-

-

-

-

-

-

-

-

Epworth Sleepiness Scale (ESS)

1917

-

-

1645

-

-

1339

-

841

432

30

EQ-5D

1917

-

-

1644

-

-

1338

-

840

431

30

Family History

2253

-

-

 

-

-

 

-

 

 

 

Gastroparesis Cardinal Symptom Index (GCSI)

1916

-

-

1650

-

-

1344

-

843

436

28

Hospital Anxiety & Depression Scale (HADS)

1875

-

-

1613

-

-

1313

-

814

422

29

Leeds Scales for the Self-Assessment of Anxiety and Depression (LADS)

1878

-

-

1614

-

-

1314

-

819

 

 

Medications – Wearing off

-

229

-

-

-

1492

-

-

-

481

171

Mini Environmental Risk Questionnaire (MERQ)

-

-

1766

-

-

-

-

-

-

-

-

Non-motor Symptoms Scale (NMSS)

1913

-

-

1641

-

-

1338

-

833

432

27

Olfaction – UPSIT

-

1242

-

-

-

-

-

-

-

-

-

Olfaction – Sniffin Sticks

-

455

-

-

-

-

-

-

-

-

-

Past medical history

2257

-

-

-

-

-

-

-

-

-

165

Parkinson’s Disease Questionnaire (PDQ8)

1918

-

-

1650

-

-

1345

-

844

432

31

Parkinson’s Disease Sleep Scale (PDSS)

1907

-

-

1624

-

-

1329

-

825

430

27

Questionnaire for Impulsive-Compulsive Disorder in Parkinson’s Disease (QUIP)

1912

-

-

1645

-

-

1339

-

838

432

28

REM Sleep Behaviour Disorder screening (RBD)

1937

-

-

1665

-

-

1355

-

851

440

32

Scales for Outcomes in Parkinson’s Disease – Autonomic questionnaire (SCOPA-AUT)

1916

-

-

1647

-

-

1342

-

841

434

28

UPDRS Patient – Section 1

1912

-

-

1641

-

-

1340

-

837

434

28

UPDRS Patient – Section 2

1915

-

-

1645

-

-

1341

-

841

433

28

Serum samples (n)

Months 

0

6

12 18 24 30 36 42 54 72 90

 

Recent-onset cases

1642

- - 1107 - - 572 - 217 450 29

APPLY FOR DATA ACCESS

Applications for data and biosample access are reviewed by committee.

 

Researchers should download and complete the form below, and submit via email.

 

Normally, applicants will receive a response within three weeks.

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