Tracking Parkinson's
Tracking Parkinson's

2019 Dataset for Recent-onset cases

Download metadata

.zip file of data dictionaries

Data collection for our study is on-going. Below is an overview of data collected for recent-onset cases at each follow-up visit.  

 

We welcome initial informal applications about use of the datasets and/or blood samples to support other Parkinson's research studies.  Please email us to explain what research ideas you have and how we might follow-up.  

 

We can then assist you to prepare a written application to the Data & Biosample Access committee, which is a short form defining the proposed study.

 

The process is then completed by a Data Transfer Agreement with our study sponsor, NHS Greater Glasgow & Clyde.

 

Please email the study team with any questions.

Clinical assessments (n)

Months è

0

6

12

18

24

30

36

42

54

72

Scale ê

Blood pressure

1922

-

-

-

-

-

1298

-

747

138

Clinical Impression Severity Index for Parkinson’s (CISI-PD) 

-

1893

-

-

1580

-

-

1000

-

-

Diagnostic features

-

-

1814

-

-

1492

-

-

-

139

Dyskinesia scale

-

-

-

-

-

-

-

-

843

-

Height

1954

-

-

-

-

-

1385

-

822

155

Weight

1958

-

-

-

-

-

1317

-

763

140

Current Medication (for Parkinson’s and others)

1995

1875

1818

1729

1585

1498

1414

986

825

142

L-dopa challenge

-

-

-

-

1033

-

-

-

-

22

Montreal Cognitive Assessment (MoCA)

1846

-

-

1591

-

-

1281

-

746

155

Unified Parkinson’s Disease Rating Scale (UPDRS)

Sections 1, 3 and 4

1540

-

-

1259

-

-

948

-

576

41

Hoehn & Yahr stages

1979

-

-

1696

-

-

1351

-

785

106

Patient self-reporting (n)

Months è

0

6

12

18

24

30

36

42

54

72

Scale ê

Big Five Inventory (BFI)

-

-

1686

-

-

-

-

-

-

-

Constipation

1916

-

-

1644

1916

-

1321

-

795

156

Demographics

1957

-

-

-

-

-

-

-

-

-

Epworth Sleepiness Scale (ESS)

1917

-

-

1631

-

-

1319

-

777

 

Family History

907

-

-

-

-

-

-

-

-

-

Hospital Anxiety & Depression Scale (HADS)

1912

-

-

1599

-

-

1291

-

793

760

Medications – Wearing off

-

-

-

-

-

1486

-

-

-

124

Mini Environmental Risk Questionnaire (MERQ)

-

-

1766

-

-

-

-

-

-

-

Non-motor Symptoms Scale (NMSS)

1519

-

-

1295

-

-

1037

-

569

93

Olfaction – UPSIT

-

1242

-

-

-

-

-

-

-

-

Olfaction – Sniffin Sticks

-

455

-

-

-

-

-

-

-

-

Past medical history

1903

-

-

-

-

-

-

-

-

-

Parkinson’s Disease Questionnaire (PDQ8)

1912

-

-

1632

-

-

1331

-

780

 

Parkinson’s Disease Sleep Scale (PDSS)

1854

-

-

1564

-

-

1251

-

724

118

Quality of life (EQ-5D)

1940

-

-

1636

-

-

1317

-

786

 

Questionnaire for Impulsive-Compulsive Disorder in Parkinson’s Disease (QUIP)

408

-

-

1602

-

-

1277

-

760

160

REM Sleep Behaviour Disorder screening (RBD)

1866

-

-

1558

-

-

1260

-

731

 

Scales for Outcomes in Parkinson’s Disease – Autonomic questionnaire (SCOPA-AUT)

1948

-

-

986

-

-

776

-

461

94

UPDRS Patient – Sections 1 and 2

1540

-

-

1259

-

-

948

-

576

41

Serum samples (n)

Months 

0

6

12

18

24

30

36

42

54

72

 

Recent-onset cases

1642

- - 1107 - - 572 - 217 16

APPLY FOR DATA ACCESS

Applications for data and biosample access are reviewed by our Data & Biosample Access committee.

 

Researchers should download and complete the form below, and submit via email.

 

Normally, applicants will receive a response within three weeks.

Print Print | Sitemap
© D2016