Tracking Parkinson's
Tracking Parkinson's

OUR DATA

Tracking Parkinson's is a prospective study of recent- and young-onset Parkinson’s disease and selected siblings. 

 

Our research objectives relate to variability in the clinical phenotype of Parkinson’s, which we analyse in relation to genetics and potential biomarkers.

 

There is a specific focus on motor, non-motor and cognitive features, and to  response to drug therapy.

Metadata

 

We collect anthropometric, behavioural, cognitive, demographic, neurological and pharmacological data.

 

Participants provide psychological and physiological functional ratings as well as blood and DNA samples.

 

Tracking Parkinson's consists of 3 groups

 

-  Recent onset (diagnosed <3 years)
-  Early onset (diagnosed before age 50)
-  Relatives (without Parkinson's)

Clinical

UPDRS

MoCA

Medication

CISI-PD

Patient

PDQ8     EQ5D

ESS     RBD

HADS    QUIP

SCOPA-AUT

NMSS    PDSS

Wearing off

Biosamples

LRRK2

GDA

Parkin

PARK2

PINK1/PARK6

APPLY FOR DATA ACCESS

Applications for data and biosample access are reviewed by our Data & Biosample Access committee.

 

Researchers should download and complete the form below, and submit via email.

 

Normally, applicants will receive a response within three weeks.

2019 dataset

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